Cameron Update: Monday April 8, 2013;
I know for some of you it has been to long since my last update, and some of you have want REAL updates but we’ve tried to keep the information positive for our own sanity and yours. So to date Cameron has shown us and the MEDICAL WORLD that what was thought to be impossible is very POSSIBLE, he has shown great improvement since he came home. However the truth is the KID is a fighter, and his current condition is still very serious and his outcome is unknown to us but we’re never giving up. L.E.S. WARNING!!!! So here’s the truth; the blood clot in his brain (CSVT) is still there and still unchanged from January as of last week, not what we wanted to hear, he has also been accepted into a new study at All Children’s Hospital, one for patients with rare forms of STROKES caused by his current CSVT. His diagnoses is the following, Static Encephalopathy, Severe Leukoencephalopathy, Severe Cytotoxic Cerebral Edema, 8 inch Occlusive Thrombus of the right Transverse and Right Sigmoid Sinus, Veno-Occlusive Disease, Recurrent Status Epileptics (related to an allergic reaction to a medication), mild right-sided Spastic Hemiplegia, and lastly Severe PTSD (posttraumatic stress disorder). What does all of this mean, well nothing good, if you research anyone of these you won’t like what read let alone having all of these at one time. So I ask of you who have followed and supported Cameron and our family to please continue, but don’t be shocked if some of the answers you may get aren’t always Rainbows and Sunshine. This is our life day to day, we have UPS and we have DOWNS everyday and week.