Purpose of this site...

We (Cameron's sister and brothers) created this site to keep loved ones updated with Cameron's status.
Check back daily for progress reports.
Keep praying!


Friday, February 8, 2013

Cameron Update:
2-8-13 -6:30am:
Cameron is moving a lightning speed still, he is getting stronger and stronger with every workout. He is getting his spirit back more and more every day. Hearing and seeing what he is doing everyday from Jenn is great, but knowing that I get to relieve Jenn today for the weekend shift makes me excited. We still haven't heard from any of the Neurology Team (shocking), the AI Team (Allergy Immunology) came by yesterday and took a more blood samples for some new tests. They're testing for HLA (Human Leukocyte Antigen), they are trying to put a correlation together with the Antibiotics and his two extreme episodes. Why it has taken so long for a couple of Doctors to agree that it's too coincidental that this could happen twice when he was on the same two drugs before each episode. So I have started my own "JP's Real World Dictionary" Doctors: full desperate rhetorical contortions of someone with the pathological need to be right and never be wrong; please note that if a "Doctor(s)" become hard to find, don't come and check on their patient, don't make eye contact with you if see them, walk the other way when they see you, then you have "PWGASS" (Parents Who Give a Shit Syndrome). Don't worry it's not a bad disease, it's a good one. Oh yea and they really HATE IT when someone like me who considers 6th grade as my Senior Year, and can't spell to save my life. Points out, finds answers, never stops questions them on everything that doesn't make sense, makes them SCARED when they see coming. To think that just because Jenn and I are committed parents (not parents that need to be committed) and dedicated to making sure our son gets the right medical treatments, attention, and tests he deserves has some of them not doing their job at all. This is disheartening to me to think that if other parents are not as involved we are then who is the VOICE is for those sick children who doesn't have a VOICE.

No comments:

Post a Comment