2-6-13 Update

Cameron Update: 6:30; So yesterday was a day of UPs and DOWNs. Cameron finally got moved out of the ICU and up to the 8th floor (General Medicine Floor) we thought he would have been moved to the 7th which is the Neurology Floor but sense they don't have any answers that's my guess. Cameron is feeding tube has been removed, well he removed it for the 5th time so they left it out. He is eating, drinking, taking most of his meds by mouth, and he used the bedside commode which is real big. We finally got a visit from the Hematology Team yesterday, Jenn had me on speaker phone for the meeting which worked out really well. Dr. Goldmen (who seems to be an OUT OF THE BOX thinker) listened to all of our questions and answered the ones he could, the rest were referred back to Neurology (NO ANSWERS FROM THEM). They revisited his MRI's & MRV's and go some news which wasn't so great, the first report of Cameron's Blood Clot in his brain was that is was Non-Occlusive (which means smooth blood flow), however after the real experts reviewed it was indeed Occlusive (which means blocked, or extreme narrowing of the vein). They do say that it has improved but that means "Not getting larger" or "Reducing in Size" we don't know yet. Also we mentioned the two Antiobotics he was on both times this happened, he was shocked first that he was given them a second time, but also that he treated a teenage girl who had a severe reaction to an Antibiotic years ago, now she is one of his research assistance's. They are running more tests again, all other tests have come back NEGATIVE (except one skin biopsy for showing Positive for Allergic Drug reaction). We will wait and see. Then the mail came and the picture attached is Cameron's latest report card showing his grades. As you can see he missed straight A's by one, he was back on grade level with his Twin Brother (8th) in all General Education Classes. This broke me pretty hard to see all of his hard work and what he accomplished, now he will be starting over again but "If anyone can CAM CAN". Let the work begin.