We (Cameron's sister and brothers) created this site to keep loved ones updated with Cameron's status. Check back daily for progress reports. Keep praying!
Friday, February 8, 2013
Cameron Update: 2-8-13 -6:30am:
Cameron is moving a lightning speed still, he is getting stronger and
stronger with every workout. He is getting his spirit back more and more
every day. Hearing and seeing what he is doing everyday from Jenn is
great, but knowing that I get to relieve Jenn today for the weekend
shift makes me excited. We still haven't heard from any of the Neurology
Team (shocking), the AI Team (Allergy Immunology) came by yesterday and
took a more blood samples for some new tests. They're testing for HLA
(Human Leukocyte Antigen), they are trying to put a correlation together
with the Antibiotics and his two extreme episodes. Why it has taken so
long for a couple of Doctors to agree that it's too coincidental that
this could happen twice when he was on the same two drugs
before each episode. So I have started my own "JP's Real World
Dictionary" Doctors: full desperate rhetorical contortions of someone
with the pathological need to be right and never be wrong; please note
that if a "Doctor(s)" become hard to find, don't come and check on their
patient, don't make eye contact with you if see them, walk the other
way when they see you, then you have "PWGASS" (Parents Who Give a Shit
Syndrome). Don't worry it's not a bad disease, it's a good one. Oh yea
and they really HATE IT when someone like me who considers 6th grade as
my Senior Year, and can't spell to save my life. Points out, finds
answers, never stops questions them on everything that doesn't make
sense, makes them SCARED when they see coming. To think that just
because Jenn and I are committed parents (not parents that need to be
committed) and dedicated to making sure our son gets the right medical
treatments, attention, and tests he deserves has some of them not doing
their job at all. This is disheartening to me to think that if other
parents are not as involved we are then who is the VOICE is for those
sick children who doesn't have a VOICE.
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