05-21-2011

Thursday May 19th. We asked for there not to be any visitors for Cameron we wanted him to have very low to no stimulation.  J.P. and I had to really monitor how Cameron was getting suctioning done by his nurses and his respiratory therapist.  Some got a little offended and said that they have been doing this along time...we kindly informed them that we understand that but this was the first time working on our son and made them listen to the brief medical history on Cameron....

Cameron had his last sub clinical seizure on Thursday at 12:30 P.M.  The Neurologist saw some activity on the EEG but not anything for long period of times and Cameron is ways responsive before, during and after.  The Neurologist has adjusted Cameron's seizure medicines.

The cardiologist had another echo done and his heart is back down to 50% But this was okay for Cameron's cardio team because they have taken him off all heart medicines.  Cameron's left ventricle was working at 50% all by its self!! and this should improve with time. 
A couple of days ago they did discover that Cameron has Cardiomyopathy and on this echo this seemed to improve as well.

The cardio team wanted to check to see if Cameron's twin, Tyler has this same condition. They wanted to see if they were born with it.  Tyler had an Echo on Wednesday and thankfully Tyler does not have it. So the cardiologist thinks that Cameron got this heart condition from all the stress on his heart from this ...virus.

Friday May 20th.  We still limited visitors for Cameron.  The Neurologist did okay for Cameron to have his physical therapy and speech therapy. Cameon got to have three ice chips during speech therapy and he loved them!!! Each day Cameron is getting a little stronger with the coughing.  He tries to talk but it is very difficult to understand.

Saturday May 21st.  Cameron was able to get the EEG off of his head.  J.P. said that he pulled out his NG tube (feeding tube) on his own.  So he had to get that placed back in.  Cameron over the coarse of the past couple of days was able to be weaned off the nasal seapap machine. (this machine forced air threw his nose)
He had his physical therapy, occupational therapy, and his speech therapy.  Cameron enjoyed about 8 to 10 ice chips through the day. Cameron recognized said  mema and pop pop's names...