Sunday 05-22-11
Cameron was busy Sunday morning he pulled his NG tube and his nose trumpet....They did put the NG tube back.  The speech therapist came in and had him try some more ice chips, and then moved on to having Cameron try some apple juice, he didn't do so well the first time it went down his airway.  A little while later during therapy he tried it again and did ok with it.
Later in the day I asked him how the apple juice was he said he didn't like it and he spit it out on purpose.  Cameron had a very long nap on Sunday and didn't end up sleeping very soundly during the night.

Monday 05-23-11

Wow what accomplishments he had today....Cameron's nurse was on a mission for him to sit in a chair and she did it first thing in the morning.  It took THREE people to do this.  The nurse had to hold Cameron like an over sized infant.  It was so hard to watch Camerons head lay on her sholder because he didn't have control of it. He sat in the chair for about ten minutes, that was all that he could handle. 

Cameron was able to get a good nap in and then he had physical therapy, occupational therapy, and speech therapy all at once in the afternoon.  Cameron was able to try a popsicle, juice and gatorade today, they thickened the gatorade (they made almost like a pudding consistency) to make it easier for Cameron to swallow. 

He is still getting respiratory therapy about every four hours.  He really doesn't care for this they still pat hard on his chest for him to loosen the flem up in his chest.  This is helpful for when he coughs and each day and is getting stronger.

The cardioologist came by after they performed his echo on his heart. Cameron's heart is up to 55% and the  Cardiomyopathy seemed to be getting a little better.

Cameron still has pancreatitus and still is not getting fed through his NG tube.  He is still getting TPN (total parental nutritionthrough his IV.

Tuesday 05-24-11

Cameron slept really well Monday night from 10:30 P.M. to 4:00 A.M. After that he was dosing off and on.

During Cameron's physical therapy they moved him to the edge of the bed to perform some leg exercises off the edge like kicking.  The occupational therapist held Cameron up from behind.  They positioned cameron's arms to the side so that he would know how to hold himself up and balance himself.  Let me be clear Cameron has no strength to do anything on his own he is always assisted by the hospital staff. 

During speech therapy Cameron drank some apple juice and tried some jello. They converted his bed to a chair positition to change things for him a little...

Cameron continues to get Respratory therapy every four hours wether he likes it or not

Cameron's speech is getting better and louder.  After having the breathing tube he just didn't have the muscles to project so that we could hear him....

Cameron is getting a little better everyday, they are small steps which is great as long as they go in the rite direction...

Thank you for keeping us in your prayers.