Wednesday 5-25-11

Cameron was busy today with all of his normal speech therapy, and respiratory therapy.

During speech the therapist brought Cameron breakfeast, eggs and bisquits with honey.
Cameron just had a couple of smalllllll bites of each but seemed to do ok with it.

They decided to go ahead and have Cameron do a swallow study...Since early in the morning he decided to pull out his NG tube again....(I notice that he is successful in doing this when J.P. is sitting with him and I'm not there......)
This is where they give him different consistancies of food for him to swallow....they gave him pasta, bread, apple sauce, ice cream and juice.  They do this while x-raying him on video.  They study the video to make sure that he closes his airway while swallowing.
It was exhaustng for Cameron just to get to the room that they had to perform this in.  They had to put him on a special chair...that was not comfortable if you could move yourself around...it was horrible for Cameron. He has to have somebody support his head, back, and his limbs....this chair had no sides and had to be X-ray friendly.
Cameron did okay on swallowing things like apple sauce, pudding or yogurt.  He is not okay swallowing liquids apparently the timing for liquids is harder then the pure consistancy.
For now Cameron does not have his NG tube back in.  They switched all of his medicines to pills.  They crush the pills and put them in either applesauce or pudding.  He then has to eat them in just a couple of bites.
(For me it was easier for it to go thru the NG tube because it could be done while he was sleeping or anything...)  Now we have to coax him into taking the bites....this is not easily done.

Cameron still has pancreatitus and because of this he still can not eat...by way of food or NG tube. He is being fed stil by TPN.  It's been about two weeks that we have had this diagnosis.  The GI doctors are going to run some blood work on his liver to make sure everything is ok. ( these two organs work together)

Thursday 5-26-11

Well we are officially out of the ICU!!!!!!!!!!  We have MOVED up to the 8th floor this afternoon.
Cameron had fun during speech therapy this morning, he played UNO and I spy after he did his special word exercises....
They had Cameron sit on the edge of his bed during physical and occupational therapy.   Cameron needs the practice still to try to sit up and gain head control. Each day we notice he is able to tolerate this little longer then the day before.

Aunt Kim came up to sit with Cameron yesterday, while I went to a school function.  This was the first time that we (either dad, J.P. or myself) have left him all at once.  Cameron had fun shooting the nerf dart guns that Aunt Kim got him for his birthday. They had Mema and Pop pop keep them company for a little bit.

Cameron didn't end up sleeping too much...maybe three hours.....which meant I got about the same amount...