Update as of 5-4-11 morning

(Another email from Uncle Chris to the Piperfire Co.)

Cameron seems like he is out to prove the Doctor’s wrong at every turn.  Cameron’s body and organs have stabilized.  There have been no further failures, although the Doctors have warned of the possibility of future failures, it is great to have had two days of relative stable conditions.  We are all ecstatic.

Last night Cameron had an MRI to determine the extent of his brain damage and to determine if there were blood clots or bleeds after the operation.  He was free and clear of anything imminently dangerous, but there had been significant trauma to the frontal lobe of the brain and another area as well.  The neurologist stated that he had seen worse and had patients make a full recovery.  He also stated that he had seen less damage in patients that had life long struggles.   

Today, they have stopped the medication that is keeping Cameron in a coma.  The next week or so will be a sensitive time for our family and Cameron.  He is likely to have some difficult reactions as he comes out of this coma.  He may be sensitive to noise, smell, and light.  He may also have outbursts and emotional problems.  He will be starting some music therapy over the next couple of weeks from what we were told.  From what we understand, this is going to be a slow process with small victories and set backs along the way.  

As a family, we are all in awe of where we are today in contrast to Saturday morning.  We think our entire family can all agree that this was the worst day in our collective lives.  The tears are bit rarer and smiles and laughs are much more common since yesterday.  We all feel truly blessed at where we have come in a VERY short period of time. 

Us kids have really held up well throughout this process.  Today is their first day to spend some considerable time away from the hospital since Saturday.  We are at home to visit their dog and get some relaxation time away from the stresses of the hospital.  We have been sleeping at the Ronald McDonald house and taking most of their meals and spending most of their time in Cameron’s room or in the hospital waiting room.  All Children’s is an amazing place for patients and siblings.  It is very kid-friendly.  The counselors meet and speak to the kids daily about what is going on and encourages them as well as the adults to talk about what is going on with each other. 

We sincerely appreciate all of you who have sent cards, emails, texts, and dinners.  The support of the community has been nothing short of overwhelming for Jennifer and JP.  As JP said, “We truly would not have made it through this if not for our family and friends.”